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Erin Russell's avatar

Thank you for sharing!!! It is so validating to hear your story. I found myself to a "little woo" by way of similar circumstances and once you see the life changing/saving benefits of being your own advocate, I don't think you can ever go back. It is now a way of thinking/being in the world and although it can be lonely at times, I have found it incredibly empowering. I agree that the hardest part is knowing where to draw the line with finding accurate information but there are fundamental principles of functional health that I continue to return to. I recently discovered Peter Attia's work and find him to be an excellent balance of what he calls "medicine 3.0".

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Joanne Schneider Demeireles's avatar

Turns out there are a lot of us!

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Alina's avatar

Hi Jo! Hope the tumor is benign and treatable! Yikes! I'm glad to read of your advocacy efforts, and they are so so important. For a balanced perspective, I would also recommend reading "Overdiagnosed: Making People Sick in the Pursuit of Health" By Dr. Gil Welch. It's a difficult balance to strike, but important to keep both perspectives in mind.

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Joanne Schneider Demeireles's avatar

Thank you for this, I'll definitely check this book out! The problem I see is less around the volume of diagnostics and more around the more personalized conversations that need to be had between doctors and patients.

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Hina Ahmed's avatar

Thank you for sharing and always having the conversations that need to be had! Will definitely be following along on this journey with you ❤️

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Loulou Gaget's avatar

thanks for sharing, you’re the best and have such an impactful voice. i am sharing this with friends rn!

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Joanne Schneider Demeireles's avatar

Thank you for your support!!

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Kate Connor's avatar

Thank you for starting this (very important and timely) conversation, and putting your experience out there! Excited to follow along :)

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Joanne Schneider Demeireles's avatar

Thank you!! This conversation is overdue :-/

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Anna Forte's avatar

I'm grateful your husband posted this on LinkedIn and that the algorithm served it to me. I'm excited to be a new follower.

This piece resonated with me. I've become disenchanted by the conventional medical system after fighting my care team to test me for PCOS. After 4 years of feeling "off" I finally found my voice and got the diagnosis that I knew in my gut would come. I applaud your self-advocacy and that you're using your platform to encourage people to be a squeaky wheel even in the face of discomfort.

Sending all the healing energy your way!

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Sparkei's avatar

Would be curious what you think of “Good Energy” by Casey Means! Stanford trained surgeon and advisor to RFK Jr.

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